Damian's Music

Damian's Music
Damian contemplating music

Tuesday, September 7, 2010

Superhero & Champion


Superhero & Champion

My wife has always called me my son's superhero. It stems from the first days of his life when I was the primary. I was the one who watched him emerge from the womb blue, saw him take his first breath, was the one fighting with doctors initially when they were saying he needed to be institutionalized long term, etc due to the initially poor prognosis. My wife had recently had surgery, and I had to be what both she and my son's hero. The other reasons that she calls me a superhero is the fact that Damian Jr. is a total daddy's boy, and now he is my full time job. So yes, I will embrace that designation, but she is undoubted his champion.

I remember six years ago when tubes coming out of every part of his little body, and my wife struggled to pull herself up to his bed to see her son. Having had a major surgery, this was no small feat. I tried to explain to her everything that was explained to me while she recovered, and she just stroked his head and whispered into his ear what would be the defining words of his life, "Keep Fighting, just Keep Fighting". That was all she had that day, but she would quickly model that statement.

Before she was well enough to move around, she was working to make sure that our son had everything he needed. It started with his breast-feeding as she was in tears making sure that he had what was most nutritious. I soon had to go back to work so she took the lead. There was meeting after meeting with doctors and specialists. She was interviewing therapists, finding programs, and firing people who weren't in agreement with what we believed God was doing in his life. She was a force to be reckoned with.

She eventually went back to work and he to school, but this process repeated itself. She would be in constant contact with his teachers to ensure his progress. If she thought that a person was giving up on him or was resolved with where he had come thus far, then she would go on the attack. There where even moments when she had to let doctors go. They would look at her like she was crazy, but she had told her son to keep fighting, and she wasn't going to do anything less.

Recently, we were the given the financial figures that would be necessary to make our home and lives more accessible for our son that were truly beyond what we could do on our own. Mommy to the rescue, and this blog was birthed. My wife refused to be stopped, slowed, or shushed. She has made it up in her mind that Damian Jr. would get everything he needs to live a healthy and a happy life. It's become a part of her personal mission. I am now his primary caregiver, but I can't out work his Champion.

Well, her birthday is this week. She is in need of a break as most Champions are, and I am working hard to give her a brief moment to rest. The one thing you can do to make her birthday extra special is to give to Damian Jr.'s medical fund. Like all Champions her greatest wish if for victory in the battle. To see that her son has what he needs would be the best birthday present she could ever get.

Written by Superhero aka Damian Sr.

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